Fighting for the Lives of Children

When your child is diagnosed with a rare, genetic disease, it feels like you’re rolling down a mountain, just waiting to hit rock bottom, says Doug Berns. When his daughter, Samantha, was diagnosed with Niemann-Pick Type C, an incurable, neurodegenerative disorder, he and his wife watched as Samantha’s energy depleted, her balance became shaky, and her laughter quieted.

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About the Series:

The University of Notre Dame’s award-winning “What Would You Fight For?” series showcases the work, scholarly achievements, and global impact of Notre Dame faculty, students, and alumni. These two-minute segments, each originally aired during a home football game broadcast on NBC, highlight the University’s proud moniker, the Fighting Irish, and tell the stories of the members of the Notre Dame family who fight to bring solutions to a world in need.

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October 20, 2017

Health and SocietyScience and TechnologyBoler-Parseghian Center for Rare and Neglected DiseasesChemistry and BiochemistryCollege of ScienceDiseaseMedicinePaul HelquistResearch